I stopped the chemo pills on Wednesday, and it has been glorious ever since. Great sleeps, no sweats. I hope I made the right decision. I spoke with my surgeon yesterday (who is absolutely incredible), and he reassured me that I made the right decision. Taking the pills is optimal, but not at the expense of sleep. Sleep is more important. I honestly think that this " unusual reaction" has something to do with type 1 diabetes....it's the only explanation. Speaking of diabetes, I can't find any information on dealing with type 1 diabetes and cancer treatment. Everything online, is geared towards type 2 diabetes and older cancer patients. I can't be the only one dealing with this? I want to talk to someone who has gone through this before. I can't find anyone (it also doesn't help that I don't have social media accounts...maybe there's a facebook group somewhere in the world that talks about this). You would think there would be a protocol in place for treating these two diseases together, right? I honestly feel like a guinea pig at this point, and it baffles my mind that the two diseases are so separate, and that the doctors are not collaborating on a protocol for this. I reached out to the JDRF (Juvenile Diabetes Research Foundation) to see if they know anything at all about this. It's the only thing I can think of to find out more. I heard back from them and I have a call set up next week. I feel like this would be a great opportunity to spearhead some sort of educational resource or guideline for others in the future.
ACD
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